My Journey Through The PPACA: Patient-Centered Research

Trying to read the PPACA is brutal. I've skimmed it twice and am now going through in a little more detail- reading the words. I have no intention of being an expert on this- but, I do want to be informed with what it is and what it isn't. So, I'm going to share some thoughts as I go through it on the blog.

As with any legislation (not just health care) the words and the organization (sections, titles, and all the rest) probably makes sense to the lawyers but I doubt even the politicians can explain it. That is a large part of the problem with this- it is just hard to explain what is written. Very few have tried.

I was particularly interested in the "patient-centered" stuff. Section 6301 page 609 creates the "Patient Centered Outcomes Research Institute" and a boatload of money is allocated to it.

Here's the definition/purpose:

"to assist patients, clinicians, purchasers, and policy-makers in making informed he

alth decisions by advancing the quality and relevance of evidence concerning the manner in which

disease, disorders, and other health conditions can effectively and appropriately be prevented, diagnosed, treated, monitored, and managed through research and evidence synthesis that considers variations in patient subpopulations and the dissemination of research findings with respect to the relative health outcome, clinical effectiveness, and appropriateness of medical treatments services and items--"

Whew. Take a breath.

While this diatribe probably means something to those in health care- (health care loves to use a lot of words or acronyms to say simple things)- the average person will have no clue what this is and why it may be important. How this definition of purpose even remotely relates to anything "patient centered" is beyond me.

I've found there are some good things in the law and some things that make no sense. Many times I had to work to find them. The lack of education, communication and explanation of this reform approach at a very basic consumer level remains a huge part of the problem as this debate continues.

Beginning to organize the information in the health care system is a good thing. Starting to organize system-wide "best-practices" and prevention methods is a good thing for everyone involved. Unfortunately, the consumer is never going to know why this is important because nobody is telling them and they have to try figure it out on their own with the 77 word definitions provided. Or, they just do the easiest thing and listen to the talking points of cable news or the politicians.

We all know how balanced these sources are.